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Carnitine Palmitoyl Transferase 1 Deficiency (CPT1)

Parent Information
Star-G CPT-1A Fact Sheet
Genetics Home Reference CPT I Fact Sheet

Family Support Information
Oklahoma Support

Oklahoma Family Network
Oklahoma Family Voices
Oklahoma SoonerStart

National Support
FOD Family Support Group
Genetic Alliance
MUMS National Parent to Parent Network
Parent-to-Parent USA

Provider Information
ACT Sheet & Algorithm
Fact Sheet
Emergency Management Protocol
Decision Tree

If you have any questions, please contact:

Mary E. Monks, RN
Metabolic Nurse Specialist
Newborn Screening Metabolic Long-Term Follow-Up Coordinator
Phone: (405) 271-8001 Ext. 42074
Pager: (405) 559-1378

The Newborn Screening Program
Phone: (405)271-6617
Toll Free: (800) 766-2223

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