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Long-chain 3-Hydroxyacyl-CoA Dehydrogenase Deficiency (LCHADD)/Trifunctional Protein (TFP) Deficiency

Parent Information
Star-G LCHADD Fact Sheet
Star-G TFP deficiency Fact Sheet
Genetics Home Reference LCHAD deficiency Fact Sheet

Family Support Information
Oklahoma Support

Oklahoma Family Network
Oklahoma Family Voices
Oklahoma SoonerStart
Children and Youth with Special Health Care Needs
National Support
FOD Family Support Group
Genetic Alliance
MUMS National Parent to Parent Network
Parent-to-Parent USA

Provider Information
ACT Sheet
Fact Sheet
Emergency Management Protocol
Decision Tree

If you have any questions, please contact:

Mary E. Monks, RN
Metabolic Nurse Specialist
Newborn Screening Metabolic Long-Term Follow-Up Coordinator
Phone: (405) 271-8001 Ext. 42074
Pager: (405) 559-1378

The Newborn Screening Program
Phone: (405)271-6617
Toll Free: (800) 766-2223

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