DIRECTORY OF NATIONAL RESOURCES
ABLEDATA
8630 Fenton St., Ste 930
Silver Springs, MD 20910-3319
(301) 608-8912 (TTY)
(800) 227-0216
FAX: (301) 608-8958
www. abledata.com
ABLEDATA maintains a national database of information on assistive technology and rehabilitation equipment available from domestic and international resources. With more than 25,000 product listings, ABLEDATA covers everything from white canes to voice output programs.
Access Eric
2277 Research Boulevard, 6M
Rockville, MD 20850
(800) LET-ERIC (538-3742)
(301) 519-5157
FAX: (301) 519-6760
Email: accesseric@accesseric. org
www.eric.ed.gov
National Information Systems to provide access to education literature and resources.
Access to Recreation, Inc.
8 Sandra Court
Newbury Park, CA 91320
(800) 634-4351
www.accesstr.com
Publishes free catalogs containing information about adaptive recreation equipment.
Advanced Medical Technology Association (AdvaMed)
1200 G St NW, Ste 400
Washington, DC 20005-3814
(202) 783-8700
FAX: (202) 783-8750
Email: info@AdvaMed.org
www.himanet.com
Provides services to the needs of people with medical products, distributors, and home care companies.
Alexander Graham Bell Association for the Deaf & Hard of Hearing
3417 Volta Place NW
Washington, DC 20007-2778
(202) 337-5221 (TTY)
(866) 337-5220
FAX: (202) 337-8314
www.agbell.org/
Alliance for Technology Access
1304 Southpoint Blvd. Ste 240
Petaluma, CA 94954
(707) 778-3011
(707) 778-3015 (TTY)
FAX: (707) 765-2080
Email: ATAinfo@ATAccess.org
www.ataccess.org
Alliance of Genetic Support Groups
4301 Connecticut Ave, NW
Ste 404
Washington, DC 20008-2304
(202) 966-5557
FAX: (202) 966-8553
Email: information geneticalliance.org
www.geneticalliance.org
Alliance of Genetic Support Groups is an international coalition of individuals, professionals and genetic support organizations working together to enhance the lives of everyone impacted by genetic conditions.
Alzheimer’s Association
225 N Michigan Ave, FL. 17
Chicago, Illinois 60611-7633
(312) 335-8700
(800) 272-3900
FAX: (312) 335-1110
www.alz.org
American Alliance for Health, Physical Education, Recreation and Dance
1900 Association Dr
Reston, VA 20191-1598
(703) 476-3400
(800) 213-7193
Email: webmaster@aahperd.org
www.aahperd.org
A membership organization of professionals in the fields of health, physical education, recreation, and dance; nationwide network provides information about adapting educational programs and activities to the needs of people with disabilities.
American Camping Association
5000 State Rd 67 N
Martinsville, IN 46151-7902
(765) 342-8456
www. ACAcamps.org
A community of camp professionals dedicated to enriching the lives of children and adults through camp experiences.
American Cancer Society
(800) ACA-2345
www.cancer.org
American Counseling Association
5999 Stevenson Ave
Alexandria, VA 22304
(703) 823-6862 (TDD)
(800) 347-6647
FAX: (800) 473-2329
FAX: (703) 823-0252
www. counseling.org
A professional organization of educational and social service counselors, including elementary through post-secondary education counselors, vocational, mental health, employment and rehabilitation counselors, et al; newsletters and publications are available to assist these professionals.
American Diabetes Association
ATTN: National Call Center
1701 N Beauregard St
Alexandria, VA 22311
(800) 342-2383
Email: webmaster@diabetes. org
www. diabetes.org
American Foundation for the Blind (AFB)
11 Penn Plaza, Ste 300
New York, NY 10001
(212) 502-7600
(800) 232-5463
FAX: (212) 502-7777
Email: afbinfo@afb.org
www.afb.org
American Health Care Association
1201 L St, NW
Washington, DC 20005
(202) 842-4444
FAX: (202) 842-3860
www.ahca.org
Advocating quality in long term health care. The AHCA is a professional organization that represents the interests of licensed nursing -homes, assisted living, and subacute care facilities to Congress, Federal regulatory agencies, and other professional groups. AHCA also provides leadership in dealing with long-term-care issues.
American Heart Association
National Center
7272 Greenville Ave
Dallas, TX 75231
(800) 242-8721
www.amhrt.org
American Lung Association
61 Broadway, 6th Floor
New York, NY 10006
(212) 315-8700
www.lungusa.org
American Occupational Therapy Association (AOTA)
4720 Montgomery Lane
P. O. Box 31220
Bethesda, MD 20824-1220
(301) 652-2682
(800) 377-8555 (TTY-members only)
FAX: (301) 652-7711
www.aota.org
AOTA’s mission is to support a professional community for members and to develop and preserve the viability and relevance of the profession. The organization serves the interests of its members, represents the profession to the public, and promotes access to occupational therapy services.
American Orthotic and Prosthetic Association
330 John Carlyle St., Ste 200
Alexandria, VA 22314
(571) 431-0876
FAX: (571) 431-0899
Email: info@aopanet.org
www.aopanet.org
American Physical Therapy Association (APTA)
1111 N Fairfax St
Alexandria, VA 22314-1488
(703) 684-2782
(703) 683-6748 (TDD)
(800) 999-2782
FAX: (703) 684-7343
www.apta.org
American Speech-Language-Hearing Association (ASHA)
10801 Rockville Pike
Rockville, MD 20852
(301) 897-5700 (MD Only)
(800) 638-8255 (Outside MD)
Email: actioncenter@asha.org
www.asha.org
American Red Cross
2025 E St NW
Washington DC 20006
(202) 303-4498
www.redcross.org
American Spinal Injury Association
2020 Peachtree Road, NW
Atlanta, GA 30309-1402
(404) 355-9772 (v)
(404) 355-1826
American Stroke Association National Center
7272 Greenville Ave
Dallas, TX 75231
(888) 478-7653
www.amhrt.org
American Therapeutic Recreation Association
1414 Prince St., Ste 204
Alexandria, VA 22314
(703) 683-9420
FAX: (703) 683-9431
Email: atta@accessnet.com
www.atra-tr.org
American Wheelchair Bowling Association
Earle Annis, Executive Director
2912 Country Woods Lane
Palm Harbor, FL 34683-6417
(727) 734-0023 (FAX/Phone)
www.awba.org
The Arc Steven Eidelman, Executive Director
1010 Wayne Ave, Ste 650
Silver Springs, MD 20910
(301) 565-3842
FAX: (301) 565-3843 or 5342
Email: info@thearc.org
www.thearc.org
The National Organization of and for people with mental retardation and related developmental disabilities and their families.
The Access Board
1331 F St NW, Ste 1000
Washington, DC 20004-1111
(202) 272-0080 (V)
(202) 272-0082 (TTY)
(800) 872-2253 (V)
(800) 993-2822 (TTY)
FAX: (202) 272-0081
www.access-board.gov
Federal agency that enforces requirements for access to federally funded buildings and facilities; sets guidelines for the Americans with Disabilities Act (ADA); provides assistance and information to those seeking to remove architectural, transportation, communication and attitudinal barriers affecting people with disabilities.
Arthritis Foundation
P. O. Box 7669
Atlanta, Georgia 30357-0669
(800) 283-7800
www.arthritis.org/
Association of Children’s Prosthetic- Orthotic Clinics
6300 N River Rd., Ste. 727
Rosemont, IL 60018-4226
(847) 384-4226
FAX: (847) 823-0536
Email: king@aaos.org
www. acpoc.org
Association on Higher Education and Disability (AHEAD)
Stephen Smith, Executive Director
P. O. Box 540666
Waltham, MA 02454
(781) 788-0003
FAX: (781) 788-0033 *e
Email: AHEAD@ahead.org
www.ahead.org/
The Association on Higher Education and Disability (AHEAD) is an international multicultural organization of professionals committed to full participation in higher education for persons with disabilities. The Association is a vital resource, promoting excellence through education, communication, and training.
National Attention Deficit Disorder Association (ADDA)
1788 Second St., Ste 200
Highland Park, IL 60035
(847) 432-ADDA
FAX: (847) 432-5874
www.add.org
Autism Society of America
7910 Woodmont Ave., Ste 300
Bethesda, MD 20814-3067
(301) 657-0881
(800) 328-8476
www.autism-society.org
Aztech, Inc.
3108 Main St
Buffalo, NY 14214
(716) 836-0822
Email: jfossa@aztechwnyilp.org
www.wnyilp.org
Aztech, Inc. is a full service market research company offering a complete range of services including: focus groups, interviews, surveys, literature searches, industry profiles and trends, technology transfer, invention commercialization and business consulting for a fee.
Brain Injury Association of America
8201 Greensboro Dr., Ste 611
McLean, VA 22102
(703) 761-0750
(800) 444-6443 Family Helpline
www.biausa.org
Breaking New Ground
Purdue University
1146 ABE Bldg.
West Lafayette, IN 47907-1146
(765) 494-5088 (TTY)
(800) 825-4264 (TTY)
FAX: (765) 496-1356
Email: bng@ecn.purdue.edu
http://ABE.www.ecn.purdue. edu/ABE/Extension/BNG/index
Center for Universal Design College of Design
North Carolina State University
501 Pullen Rd
Brooks Hall, Room 104
Box 8613
Raleigh, NC 27695-8613
(919) 515-3082
(800) 647-6777
FAX: (9191) 515-7330
www. design.ncsu.edu
Conducts research and training aimed at increasing the quality and availability of residential environments for people with disabilities; also offers information and referral services relating to accessible housing.
Children and Adults with Attention Deficit Disorders (CHADD)
E. Clarke Ross, CEO
8181 Professional Place, Ste 150
Landover, MD 20785
(301) 306-7070
(800) 233-4050
FAX: (301) 306-7090
www.chadd.org
Children’s Defense Fund
25 E Street NW
Washington, DC 20001
(202) 628-8787
Email: cdfinfo@ childrensdefense.org
www. childrensdefense.org
Children’s SSI Project
Association of University Centers on Disabilities
1010 Wayne Ave., Ste 920
Silver Spring, MD 20910
(301) 588-8252
FAX: (301) 588-2842
www. aucd.org/projects/SSI/ssipage.htm
Office of Special Education And Rehabilitative Services (OSERS)
U.S. Department of Education
Room 3132, Switzer Building
Washington, DC 20202-2524
(202) 205-8241
www.ed.gov/offices/OSERS/
OSEP/index.html
Provides information about a wide range of topics concerning individuals with disabilities, especially in the areas of federally funded programs and federal legislation; referrals to appropriate sources of information and assistance are provided; publishes helpful publications, including Pocket Guide to Federal Help for Individuals with Disabilities, Summary of Existing Legislation Affecting Persons with Disabilities .
NIH Clinical Center
National Institute of Health
9000 Rockville Pike
Bethesda, MD 20892
(301) 496-2563
FAX: (301) 402-2984
Email: OCCC@cc.nih.gov
www.cc.nih.gov
Community Transportation Association of America
1341 G St, NW, 10th Floor
Washington, DC 20005
(202) 628-1480
(800) 891-0590
FAX: (202) 737-9197
www.ctaa.org
CTAA is a nonprofit membership association whose members are dedicated to mobility for all people, regardless of wealth, disability, age or accessibility.
Council for Exceptional Children (CEC)
1111 N Glebe Rd., Ste 300
Arlington, VA 22201-5704
(703) 620-3660 (TTY)
(888) 232-7733
(866) 915-5000 (TTY)
FAX: (703) 264-9494
www.cec.sped.org
The Council for Exceptional Children (CEC) is the largest international professional organization dedicated to improving educational outcomes for individuals with exceptionalities, students with disabilities, and/or the gifted. CEC advocates for appropriate governmental policies, sets professional standards, and provide continual professional development.
DB-LINK
National Information Clearinghouse on Children Who Are Deaf-Blind
345 N Monmouth Ave
Monmouth, OR 97361
(800) 438-9376
(800) 854-7013 (TTY)
FAX: (503) 838-8150
Email: dblink@tr.wou.edu
www.tr.wou.edu/dblink/
Dreams for Kids, Inc.
273 Ringwood Rd
Freeville, NY 13068-5606
(607) 539-3027
FAX: (607) 539-9930
Email: janet@dreamms.org
AT information clearinghouse committed to increasing the use of computers through high quality instructional technology and assistive technology for students with special needs.
EASI: Equal Access to Software and Information
P. O. Box 818
Lake Forest, CA 92609
(949) 916-2837
www.rit.edu/~easi
EASI’s mission is to promote on-site and on-line training on accessibility for persons with disabilities. EASI participates in a wide variety of regional and national conferences.
Epilepsy Foundation of America (EFA)
4351 Garden City Dr
Landover, MD 20785-7223
(301) 459-3700
(800) 332-1000
www.efa.org
U.S. Equal Employment Opportunity Commission
1801 L St, NW
Washington, DC 20507
(202) 663-4900
(202) 663-4494 (TDD)
(800) 669-4000
(800) 800-6820 (TDD)
www.eeoc.gov
Provides technical assistance and answers questions about interpreting and implementing the Americans with Disabilities Act (ADA) employment regulations.
Family Resource Center on Disabilities
20 E Jackson Blvd, Rm #900
Chicago, IL 60604
(312) 939-3513
(313) 939-3519 (TDD)
FAX: (312) 939-7297
www.frcd.org
A coalition of parent and professional organizations dedicated to ensuring the education rights of children with disabilities through information and referral, family support, transition services, special education rights training and outreach to underserved families.
Families USA
1334 G St NW
Washington, DC 20005
(202) 628-3030
FAX: (202) 347-2417
Email: info@familiesusa.org
www.familiesusa.org
Families USA is a national nonprofit, non-partisan organization dedicated to the achievement of high-quality, affordable health and long-term care for all Americans.
Family Village
Waisman Center, University of Wisconsin- Madison
1500 Highland Ave
Madison, WI 53705-2280
Email: familyvillage@waisman. wisc.edu
www.familyvillage.wisc.edu/
Family Village is a global community that integrates information, resources, and communication opportunities on the Internet for persons with mental retardation and other disabilities, for their families, and for those that provide them services and support.
Federation for Children with Special Needs
1135 Tremont St., Ste. 420
Boston, MA 02120
(617) 236-7210
(800) 331-0688 (in MA)
FAX: (617) 572-2094
Email: fcsnifo@fcsn.org
www.fcsn.org
The Federation is a center for parents and parent organizations to work together on behalf of children with special needs and their families.
The Federal Resource Center for Special Education Academy for Educational Development
1825 Connecticut Ave. NW
Washington, DC 20009
(202) 884-8215
(202) 884-8200 (TTY)
FAX: (202) 884-8443
www.dssc.org/frc/
The FRC supports a nationwide special education technical assistance network (funded by the U.S. Department of Education’s Office of Special Education and Rehabilitative Services), plans national meetings of education professionals, provides a national perspective for establishing technical assistance activities across regions by identifying emerging issues and trends in special education, and assists in linking Regional Resource Centers with each other and with other technical assistance providers.
U.S. Department of Education
Office of Postsecondary Education
1990 K Street, NW
Washington, DC 20006
www.ed.gov/offices/OPE
Staff is available to answer questions about Federal student aid; publishes helpful materials, including Student Guide: Five Federal Financial Aid Programs.
Federation for Children with Special Needs
(617) 482-2915
(800) 331-0688 (in MA)
FAX: (617) 572-2094
Email: fcsninfo@fcsn.org
www.fcsn.org/home.htm
The mission of the Federation for Children with Special Needs is to provide information, support, and assistance to parents of children with disabilities, their professional partners, and their communities. We are committed to listening to and learning from families, and encouraging full participation in community life by all people, especially those with disabilities.
Head Start Administration for Children and Families (ACF)
U.S. Dept. of Health & Human Services
370 L’Enfant
8821 S W Promenade
Washington, DC 20201
(202) 690-6782
FAX: (202) 205-8821
www2.acf.hhs.gov/programs/ hsb/
Provider of preschool services primarily to low-income children, ages 0-5, and their families; Head Start can be a valuable preschool option for low-income families who have a child with a disability; referrals to local Head Start Programs are available.
The Health Resource, Inc.
933 Faulkner
Conway, AR 72034
(501) 329-5272
(800) 949-0090
FAX: (501) 329-9489
Email:moreinfo@
thehealthresource.com
www.thehealthresource.com
The Health Resource is a medical information service whose expert medical researchers are here to help you and your loved ones learn about all the treatment options for your cancer or other medical conditions.
Hydrocephalus Association
870 Market St #705
San Francisco, CA 94102
(415) 732-7040
Email: info@hydroassoc.org
www.hydroassoc.org
Independent Living Research
Utilization at TIRR Institute for Rehabilitation & Research
5100 Travis
Houston, TX 77002-9746
(713) 942-6159
www. bcm.tmc.edu/ilru/
The ILRU (Independent Living Research Utilization) program is a national center for information, training, research, and technical assistance in independent living. Its goal is to expand the body of knowledge in independent living and to improve utilization of results of research programs and demonstration projects in this field. It is a program of The Institute for Rehabilitation and Research, a nationally recognized medical rehabilitation facility for persons with disabilities.
International Hearing Society
16880 Middlebelt Rd., Ste 4
Livonia, MI 47154
(734) 522-7200
www.ihsinfo.org
Job Accommodation Network (JAN)
P. O. Box 6080
Morgantown, WV 26506-6080
(304) 293-7186 (V/TTY)
(800) 526-7234 (V/TTY)
FAX: (304) 293-5407
Email: jan@jan.wvu.edu
http://janweb.icdi.wvu.edu
Information resource that maintains a database of job accommodation suggestions, statistics and information for employers, rehabilitation professionals and persons with disabilities; provides information and assistance with accommodations and implementation of products and procedures in the workplace; also provides information about the ADA as it pertains to employment; disseminates brochures and printed materials; services and printed materials are available at no charge.
Learning Disabilities Association of America (LDA)
4156 Library Rd
Pittsburgh, PA 15234-1349
(412) 341-1515
FAX: (412) 344-0224
www.ldanatl.org
Little People of America (LPA)
5289 NE Elam Young Parkway Ste F-700
Hillsboro, OR 97124
(888) LPA-2001 (English/ Spanish)
(503) 846-1562
FAX: (503) 846-1590
Email: info@lpaonline.org
March of Dimes Birth Defects Foundation
1275 Mamaroneck Ave
White Plains, NY 10605
(888) 663-4637
www.modimes.org
Medicare/Medigap Information Hotline Centers for Medicare and Medicaid Services
7500 Security Blvd
Baltimore, MD 21244-1850
(877) 267-2323
(866) 226-1819 (TTY)
(410) 786-3000
(410) 786-0727 (TTY)
www.cms.hhs.gov
Mobility International, USA
P. O. Box 10767
Eugene, OR 97440
(541) 343-1284 (TDD)
FAX: (541) 343-6812
Email: info.miusa.org
www.miusa.org
Coordinates opportunities for people with disabilities to participate in international educational exchange programs, overseas volunteer projects and travel; some scholarships are available for MI participants.
Multiple Sclerosis Foundation, Inc.
6350 N Andrews Ave
Fort Lauderdale, FL 33309-2130
(888) MSFOCUS
FAX: (954) 351-0630
Email: support@msfacts.org
www.msfacts.org
Muscular Dystrophy Association (MDA)
3300 E Sunrise Dr
Tucson, AZ 85718
(800) 572-1717
Email: mda@mdausa.org
www.mdausa.org
National Accessible Apartment Clearinghouse
201 N Union St, #200
Alexandria, VA 22314
(800) 421-1221
FAX: (703) 518-6191
Email: clearinghouse@naahq.com
www.aptsforrent.com/naac/
They maintain the only national database of accessible apartments. They are able to connect individuals with disabilities with apartments adapted to their needs.
National AIDS Hotline
American Social Health Assoc
P. O. Box 13827
Research Triangle
Park, NC 27709
(919) 361-8400
(800) 342-2437 (AIDS Hotline)
(800) 344-7432 Se Habla Espanol
(800) 243-7889 (TTY)
(800) 227-8922 (STD Hotline)
FAX: (919) 361-8425
www.ashastd.org/nah
HIV/AIDS information, education and referral service.
National Alliance for the Mentally ILL (NAMI)
Colonial Place Three
2107 Wilson Blvd, Ste 300
Arlington, VA 22201-3042
(703) 524-7600
(703) 516-7227 (TDD)
(800) 950-6264
FAX: (703) 524-9094
www.nami.org
National Institute of Arthritis and Musculoskeletal and Skin Diseases Information Clearinghouse
1 AMS Circle
Bethesda, MD 20892-3675
(877) 22NIAMS
(301) 495-4484
(301) 565-2966 (TTY)
FAX: (301) 718-6366
www. nih.gov/niams
National Association of Medical Equipment Services (NAMES)
625 Slaters Ln, Ste #200
Alexandria, VA 22314-1171
(703) 836-6263
www.healthresource.org
National Association of Private Special Education Centers
1522 K St NW, Ste 1032
Washington, DC 20005
(202) 408-3338
FAX: (202) 408-3340
www.napsec.com
National Association of Protection & Advocacy Systems
900 Second St NE, Ste 211
Washington, DC 20002
(202) 408-9514
FAX: (202) 408-9520
www.napas.org
Organization consisting of directors of state protection and advocacy systems (P&A), which provide legal advocacy for individuals with developmental disabilities, and Client Assistance Programs (CAP), which assists clients of vocational rehab services with eligibility and legal difficulties; NAPAS will refer individuals to state offices responsible for these programs.
National Cancer Institute
NCI Public Inquires Office
6116 Executive Blvd., Rm 3036A
Bethesda, MD 20892-8322
(800) 4-CANCER
(800) 332-8615 (TTY)
www.nci.nih.gov
National Center for Disability Services
201 I.U. Willets Rd
Albertson, NY 11507
(516) 747-5400
(800) 949-4232
Email: natcent@aol.com
An outpatient diagnostic and treatment center offering various therapies and psychological services; also conducts federal and state funded research on the education, employment and career development of persons with disabilities; conducts seminars for rehab professionals.
National Center for Learning Disabilities (NCLD)
381 Park Ave S, Ste 1401
New York, NY 10016
(212) 545-7510
(888) 575-7373
FAX: (212) 545-9665
www.ncld.org
National Center for Medical Rehabilitation Research (NCMRR)
National Institute of Health
Executive Bldg. Rm 2A03
6100 Executive Blvd. MSC 7510
Bethesda, MD 20892-7510
(301) 402-2242
www.nichd.nih.gov/about/ ncmrr
National Center For Youth With Disabilities (NCYD)
University of Minnesota, Box 721
420 Delaware St., SE
Minneapolis, MN 55455-0392
(612) 626-2825
(612) 624-3939 (TDD)
(800) 333-6293
Email: nycd@gold.tc.umn.edu
www.peds.umn.edu/Centers/ ncyd
Information and resource center focusing on adolescents with chronic illness and disabilities and the issues concerning their transition to adult life; fosters coordination and collaboration among agencies, professionals and youth in planning and providing services; information specialists provide referrals to resources concerning programs/services, training/education, and technical assistance; publications, newsletter and fact sheets are available.
National Center on Accessibility
501 N. Morton St., Ste 109
Bloomington, IN 47404
(812) 856-4422 (V)
(812) 856-4421 (TTY)
FAX: (812) 856-4480
www.ncaonline.org
Promoting access for people with disabilities in recreation.
National Council on Disability
1331 F St. NW, Ste 850
Washington, DC 20004-1107
(202) 272-2004 (V)
(202) 272-2074 (TTY)
FAX: (202) 272-2022
Email: mquigley@ncd.gov
www.ncd.gov
A federal agency of presidentially appointed members; the Council’s aim is to empower individuals with disabilities to achieve economic self-sufficiency, independent living, and integration into all aspects of society by promoting public policies, programs, practices and procedures that guarantee equal opportunity.
National Council on Independent Living (NCIL)
1916 Wilson Blvd., Ste 209
Arlington, VA 22201
(703) 525-3406
(703) 525-4153 (TTY)
(877) 525-3400 (V/TTY)
FAX: (703) 525-3409
Email: ncil@ncil.org
www.ncil.org
Membership organization for independent living centers; distributes information about independent living issues and related legislation; provides referrals to local independent living centers and guidance to those interested in establishing such a center in their area.
National Dissemination Center for Children with Disabilities
P. O. Box 1492
Washington DC 20013
(800) 695-0285 (V/TTY)
FAX: (202) 884-8441
Email: ichcy@aed.org
www.nichcy.org
National Down Syndrome Congress
1370 Center Dr., Ste 102
Atlanta, GA 30338
(800) 232-6372
(770) 604-9500
Email: info@ndsccenter.org
www.ndsccenter.org
National Down Syndrome Society
666 Broadway
New York, NY 10012-2317
(212) 460-9330
(800) 221-4602
FAX: (212) 979-2873
Email: info@ndss.org
www.ndss.org
National Easter Seal Society, Inc.
230 W Monroe St., Ste 1800
Chicago, IL 60606
(312) 726-6200 (V)
(312) 726-4258 (TDD)
(800) 221-6827
FAX: (312) 726-1494
www.easterseals.com
National Education Association
1201 16th St, NW
Washington, DC 20036-3290
(202) 833-4000
FAX: (202) 822-7974
www.nea.org
National Federation of the Blind
1800 Johnson St
Baltimore, MD 21230
(410) 659-9314
FAX: (410) 685-5653
www.nfb.org/states/ok.htm
National Fragile X Foundation
P. O. Box 190488
San Francisco, CA 94119
(925) 938-9300
(800) 688-8765
FAX: (925) 938-9315
Email: Info@FragileX.Org
www.nfxf.org
National Institute on Deafness and Other Communication Disorders
National Institute on Health
31 Center Dr MSC 2320
Bethesda, MD 20892-2320
(301) 496-7243 (V)
(301) 402-0252 (TTY)
FAX: (301) 402-0018
www.nidcd.nih.gov
The NIDCD is the Federal Government’s principal agency for research and research training on normal mechanisms as well as diseases and disorders of hearing, balance, smell, taste, voice, speech and language.
National Institute on Disability and Rehabilitation Research (NIDRR)
U.S. Department of Education
401 Maryland Ave SW
Washington, DC 20202-7100
(202) 245-7640
(202) 245-7316 (TTY)
www.ed.gov/about/offices/ list/osers/nidrr/index.html
Provides leadership and support for a national and international program of comprehensive and coordinated research on the rehabilitation of people with disabilities; awards grants to individuals or groups seeking to improve systems, products and practices in the rehabilitation process; disseminates information relating to rehabilitation; supports Rehabilitation Research & Training Centers (RRTCs), and Rehabilitation Engineering Research Centers (RERCs).
National Health Information Center (NHIC)
P. O. Box 1133
Washington, DC 20013-1133
(301) 565-4167
(800) 336-4797
www.health.gov/nhic/
National Information Center For Children & Youth With Disabilities (NICHCY)
P. O. Box 1492
Washington, DC 20013
(202) 884-8200 (TTY)
(800) 695-0285 (TTY)
FAX: (202) 884-8441
Email: nichcy@aed.org
www.nichcy.org
Provides information and referral to parents, educators, and caregivers of children/youth with disabilities. Information is provided about specific disabilities, early intervention, special education, related services, transition planning and many other issues of importance to families with children who have disabilities.
National Information Center on Deafness (NICD)
Gallaudet University
800 Florida Ave NE
Washington, DC 20002-3695
(202) 651-5000 (TTY)
www.gallaudet.edu
National Kidney Foundation
30 E 33rd St
New York, NY 10016
(212) 889-2210
(800) 622-9010
FAX: (212) 689-9261
www.kidney.org
National Lekotek Center
3204 W Armstage Ave
Chicago, IL 60647
(800) 366-PLAY (Helpline)
(773) 276-5164
FAX: (773) 276-8644
Email: lekotek@lekotek.org
www.lekotek.org
The country’s central source on toys and play for children with special needs. Here you will learn about Lekotek’s play center programs and access a wealth of resources on opening up the world of play to children with special needs.
National Library Services for the Blind and Physically Handicapped
1291 Taylor St NW
Library of Congress
Washington, DC 20542
(202) 707-0744 (TDD)
(202) 707-5100
(800) 424-8567
FAX: (202) 707-0712
www.loc.gov/nls
National Neurofibromatosis Foundation
95 Pine St., 16th Floor
New York, NY 10005
(212) 344-6633
(800) 323-7938
www.nf.org
National Organization for Rare Disorders (NORD)
55 Kenosia Ave
P. O. Box 1968
Danbury, CT 06813-1968
(203) 744-0100
(800) 999-6673 (V)
(203) 797-9590 (TDD)
FAX: (203) 798-2291
Email: orphan@rarediseases.org
www.rarediseases.org
Clearinghouse for information about thousands of rare disorders; provides information about diseases; organizes networking program for those affected by similar disorders; promotes research and disseminates information about rare diseases and orphan drugs; provides assistance to new support groups.
National Organization of Social Security Claimant’s Representatives
560 Sylvan Ave
Englewood Cliffs, NJ 07632
(800) 431-2804
www.nosscr.org
An association of attorneys and paralegals specially trained in laws of the Social Security Administration and prepared to represent people with disabilities applying for disability benefits. Individuals can receive free referrals to NOSSCR lawyers in their area; NOSSCR publishes a monthly newsletter and conducts two conferences annually to keep members educated about SSI law; members across the country are available to speak at local meetings, seminars, etc.
National Organization on Disability
910 Sixteenth St. NW, Ste 600
Washington, DC 20006
(202) 293-5960
(202) 293-5968 (TDD)
FAX: (202) 293-7999
www.nod.org
The National Organization on Disability promotes the full and equal participation of America’s 54 million men, women and children with disabilities in all aspects of life. N.O.D. was founded in 1982 at the conclusion of the United Nations International Year of Disabled Persons. N.O.D. is the only national disability network organization concerned with all disabilities, all age groups and all disability issues.
National Parent Network on Disabilities (NPND)
1130 - 17th St, NW, Ste 400
Washington, DC 20036
(202) 463-2299 (TDD)
FAX: (202) 463-9403
www.npnd.org
Coalition of parent organizations working with and for persons with disabilities; provides reports on governmental policy and planning, as well as advocacy support to communicate the needs and priorities of families with disabilities; acts as a link between parent organizations to share the expertise of effective parent leaders; also provides reference materials, outreach to parents, and referrals to local, state, national and/or international services; very active in the development of public policy.
National Patient Air Transport Helpline
C/O Mercy Medical Aircraft
4620 Haygood Rd. Ste 1
Virginia Beach, VA 23455
(757) 318-9174
(800) 296-1217
FAX: (757) 318-9197
www.npath.org
National Rehabilitation Information Center (NARIC)
4200 Forbes Blvd. Ste 202
Lanham, MD 20706
(800) 346-2742 (V)
(301) 459-5900 (V)
(301) 459-5984 (TTY)
www.naric.com
Clearinghouse for information on disability-related and rehabilitation research, support services, consumer products and other subjects of importance to individuals with disabilities; collects and disseminates results of federally-funded research projects; information specialists provide reference and referral services; publishes free quarterly newsletter and other materials; also provides state resource guides that list disability related contacts for each state.
National Resource Center on AD/HD (CHADD)
8181 Professional Place, Ste 150
Landover, MD 20785
(800) 233-4050
www.help4adhd.org
National Scoliosis Foundation
5 Cabot Place
Stoughton, MA 02072
(800) 673-6922
FAX: (781) 341-6333
Email: nsf@scoliosis.org
www.scoliosis.org
National Sleep Foundation
1522 K. St. NW, Ste 500
Washington, DC 20005
(202) 347-3471
FAX: (202) 347-3472
www.sleepfoundation.org
National Spinal Cord Injury Association
6701 Democracy Blvd, Ste 300-9
Bethesda, MD 20817
(301) 214-4006 (V)
(800) 962-9629
FAX: (301) 881-9817
www. spinalcord.org
National Sports Center for the Disabled
P. O. Box 1290
Winter Park, CO 80482
(303) 316-1540
(970) 726-1540
FAX: (970) 726-4112
www.nscd.org
Neurofibromatosis, Inc.
9320 Annapolis Rd., Ste 300
Lanham, MD 20706-3123
(301) 918-4600
(800) 942-6825
FAX: (301) 918-0009
Email: NFinc1@aol.com
www.nfinc.org/
North American Riding for the Handicapped Association, Inc. (NARHA)
P. O. Box 33150
Denver, CO 80233
(800) 369-7433
FAX: (303) 252-4610
www. narha.org
Americans with Disabilities Act Civil Rights Division
U.S. Department of Justice
P. O. Box 66738
Washington, DC 20035-6738
(800) 514-0301 (V)
(800) 514-0383 (TDD)
www.usdoj.gov/crt-hme.html
International Dyslexia Association
Chester Building Ste 382
8600 LaSalle Road
Baltimore, MD 21286-2044
(410) 296-0232
(800) 222-3123 (V)
FAX: (410) 321-5069
www.interdys.org
Osteogenesis Imperfecta Foundation
804 W Diamond Ave., Ste 210
Gaithersburg, MD 20878
(301) 947-0083
(202) 466-4315 (TTD)
(800) 981-2663
FAX: (301) 947-0456
Email: bonelink@oif.com
www.oif.org
Project Action
700 13th St. NW, Ste 200
Washington, DC 20005
(202) 347-3066
(800) 659-6428
(202) 347-7385
FAX: (202) 737-7914
Email: projaction@easterseals. com
www.projectaction.org
Recording for the Blind and Dyslexic National Headquarters
20 Roszel Rd
Princeton, NJ 08540
(866) 732-3585
www.rfbd.org
Rehabilitation International
25 E 21st St
New York, NY 10010
(212) 420-1500
FAX: (212) 505-0871
www.rehab-international.org
An association of various organizations in over 80 countries that conduct programs designed to assist individuals with disabilities; efforts focused in the areas of prevention, rehabilitation and integration; publishes newsletter to report worldwide developments in disability and rehabilitation.
International Center for Disability Information
West Virginia Research and Training Center
806 Allen Hall
P. O. Box 6122
Morgantown, WV 26506-6122
(304) 293-0111
www.icdi.wvu.edu
A department of the College of Human Resources and Education under West Virginia University. A national center conducting research and training to assist persons with disabilities into employment, the community, and independence through information technology.
Research and Training Center on Family Support and Children’s Mental Health
Research and Training Center
P. O. Box 751
Portland, OR 97207-0751
(503) 725-4040
FAX: (503) 725-4180
www.rtc.pdx.edu
A division of Portland State University. The Center’s activities focus on improving services to families whose children have mental, emotional or behavioral disorders through a set of related research and training programs. Research efforts are clustered around five themes: 1. Family Participation in Services; 2. Family Participation at the Policy Level; 3. Families and Out-of-Home Care; 4. Evaluation of Family Organizing Efforts; 5. Interventions in Professional Education.
The Research and Training Center on Independent Living
University of Kansas
Room 4089 Dole Center
1000 Sunnyside Ave
Lawrence, KS 66045-1555
(785) 864-4095 (V)
(785) 864-0706 (TTY)
FAX: (785) 864-5063
www.rtcil.org
The RTC/IL Mission: To enable people with disabilities to control their lives and live independently through product research and development that facilitates the work of independent living centers (ILCs), consumer organizations, and policy makers.
RESNA
1700 N. Moore St., Ste 1540
Arlington, VA 22209-1903
(703) 524-6686
(703) 524-6639 (TTY)
FAX: (703) 524-6630
Email: natloffice@resna.org
www.resna.org
An interdisciplinary association for the advancement of rehabilitation and assistive technology; RESNA is concerned with the promotion and support of research, development, information dissemination, integration, and utilization of knowledge in rehabilitation technology and with ensuring that these efforts result in the highest quality of service delivery and care for persons with disabilities.
Prosthetics Research Laboratory and Rehabilitation Engineering Research Program
Northwestern University
345 E. Superior St., Rm 1441
Chicago, IL 60611-4496
www.repoc.northwestern.edu
The Prosthetics Research Laboratory and the Rehabilitation Engineering Research Program are dedicated to the improvement of prostheses and orthoses, to the improved fitting and manufacturing processes for prosthesis/orthosis systems, and to the improved basic understanding of human interactions with these systems.
Shriners International Headquarters
2900 Rocky Point Dr
Tampa, FL 33607-1460
(800) 237-5055
(813) 281-0300
www.shrinershq.org
There are 22 Shriners Hospitals throughout North America, all dedicated to providing expert, specialized medical care free of charge to children under 18 who have sustained an orthopedic, burn or spinal cord injury.
Sickle Cell Disease Association of America, Inc.
200 Corporate Point, Ste 495
Culver City, CA 90230-8727
(800) 421-8453
(310) 216-6363
FAX: (310) 215-3722
Email: scdaa@sicklecelldisease. org
www.sicklecelldisease.org
Social Security Administration
Office of Public Inquiries
6401 Security Blvd
Windsor Park Bldg
Baltimore, MD 21235
(800) 772-1213
(800) 325-0778 (TTY)
www.ssa.gov
Provides information about SSI and SSDI benefits; refers individuals to local SSA offices; distributes pamphlets about medicare and disability benefits.
Society for Accessible Travel and Hospitality (SATH)
347 5th Ave., Ste 610
New York, NY 10016
(212) 447-7284
FAX: (212) 725-8253
Email: sathtravel@aol.com
www.sath.org
Special Olympics International
1325 G St, NW, Ste 500
Washington, DC 20005
(202) 628-3630
FAX: (202) 824-0200
Email: info@specialolympics.org
www.specialolympics.org
Spina Bifida Association of America
4590 MacArthur Blvd. NW, Ste 250
Washington, DC 20007-4226
(202) 944-3285
(800) 621-3141
Email: sbaa@sbaa.org
www.sbaa.org
Spinal Cord Society
19051 County Hwy 1
Fergus Falls, MN 56537-7609
(218) 739-5252
(218) 739-5261
FAX: (218) 739-5262
http://members.aol.com/scsweb
TASH
29 W Susquehanna Ave., Ste 210
Baltimore, MD 21204
(410) 828-8274
(410) 828-1306 (TDD)
FAX: (410) 828-6706
www.tash.org
Promotes comprehensive, quality, and inclusive education for people with disabilities; collects and disseminates research findings and practical applications for education; provides support to parents and teachers working to ensure quality education for people with disabilities.
TDI-ONLINE
Telecommunication for the Deaf
8630 Fenton St., Ste 604
Silver Spring, MD 20910
(301) 589-3006 (TTY)
(301) 589-3786 (V)
FAX: (301) 589-3797
www.tdi-online.org
TDI promotes equal access in telecommunications and media for people who are deaf, hard of hearing, late deafened, or deaf and blind.
Trace Research & Development Center
University of Wisconsin-Madison
2107 Engineering Centers Bldg
1550 Engineering Dr Madison, WI 53706
(608) 262-6966
(608) 262-5408 (TTY)
FAX: (608) 262-8848
Email: info@trace.wisc.edu
www. trace.wisc.edu
To prevent the barriers and capitalize on opportunities presented by current and emerging information and telecommunication technologies in order to create a world that is as accessible and usable for as many people as possible.
Tuberous Sclerosis Alliance
801 Roeder Rd, Ste 750
Silver Springs, MD 20910
(800) 225-6872
FAX: (301) 562-9870
Email: ntsa@ntsa.org
www.tsalliance.org
United Cerebral Palsy Association, Inc.
1660 L St, NW, Ste 700
Washington, DC 20036-5602
(202) 776-0406
(202) 973-7197 (TTY)
(800) 872-5827
FAX: (202) 776-0414
Email: ucpnatl@ucpa.org
www.ucpa.org
U.S. Department of Justice
950 Pennsylvania Ave., NW
Washington, DC 20530-0001
(202) 514-2000
www.usdoj.gov
Very Special Arts
1300 Connecticut Ave NW, Ste 700
Washington, DC 20006
(202) 628-2800 (V)
(202) 737-0645 (TTY)
(800) 933-8721
FAX: (202) 737-0725
www.vsarts.org
An international nonprofit organization dedicated to promoting the creative power in people with disabilities.
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